7 -- The Hospital ER is Not a Good Vacation Spot / "SOUNDTRACK"
Last week of June, 2018 So now we had a hint of what was happening to my body. We were armed with cautions from my doctor concerning my breathing. We were saturating ourselves with information about Myasthenia Gravis, learning as much as we could. I joined several online support groups, gathering lots of information from the experiences of others. One thing I noticed as a common theme in all of the groups was the difficulty in finding doctors – even neurologists -- who listened and took them seriously. I felt blessed and grateful to know that Dr. Marom was my PCP. I was soon to discover for myself that not all doctors were as capable and caring as he. We attempted to do “normal” things, to live life as usual, to not feel like things were going off the rails, to not feel like that roller coaster was still on a dive towards crash-and-burn. However, I began to realize that my mind was slipping into some dark places. T...